On 11 September 2014 Magdalena Góralczyk and Ioannis Revolidis represented IRI and their respective projects EURECA and Linked2 Safety at the GMDS/IMIA Workshop “Research Databases” which was being held as part of 2nd European i2b2 Academic User Group Meeting.

The meeting brought together researchers working with i2b2, tranSMART and SHRINE technology solutions. Those systems are scalable computational networks that allow integrating of clinical data into repositories for future use.

IRI was present in order to discuss many legal aspects of the work done in that domain. The legal discussions focused mainly on standards with regards to de-identification of patient data, the concept of anonymity and medical research, as well as the balance between data quality and its identifiability.
The poster of both projects is available here: Poster

More information on the meeting and the meeting agenda can be found here:

Perspectives on the Right to Privacy and Data Protection

Perspectives on the Right to Privacy and Data Protection*

Discussions regarding privacy and data protection are already part of our daily lives – especially after the so called “Snowden incident”. And why should they not? The friction between legitimate intelligence gathering and privacy protection as well as data protection are highly controversial. Within the discussions the inherent systematic differences among nations are often unearthed.

In this context this paper wants to introduce different perspectives on privacy and especially data protection within a descriptive assessment. Thus a short definition of privacy is necessary. Furthermore an overview on different approach methods is introduced. Finally the regulatory frameworks regarding these issues within the United States of America and the European Union as well the subsequent frictions are presented. Weiterlesen